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Ready to take the plunge and act with us?
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JOIN

Joining is much more than just paying dues. It gives our association more weight in medical, administrative, and institutional bodies. The more members we have, the stronger our voice becomes—with healthcare professionals, funders, and public authorities.

As a member, you participate in the association's decisions and help shape our priorities. You have a voice. You matter.

 

Your membership is tax deductible at a rate of 66% for individuals, 60% for companies.

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SKILLS OR CASH DONATIONS

Funding research, producing information tools, organizing events, translating medical resources — all of this has a cost.

Your donation, whatever its amount, is precious and makes what we are building together a reality.

Would you like to support us in another way, by contributing your skills? That's an equally essential contribution.

Examples of skills we need:

  • Graphic design and visual communication

  • Writing and translation

  • Legal and administrative

  • Medical and paramedical

  • Computer science and web development

  • Accounting and management of associations

 

The association is recognized as being of general interest: your donations entitle you to a tax reduction of 66% for individuals, 60% for companies.

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BECOME A VOLUNTEER

The families of Vaillants are scattered across the country — and many know this loneliness. Volunteering is also a way to break this isolation: to be together, to share, to feel less alone in the face of a demanding daily life.

You don't need a lot of time. An hour a week, a specific skill, being present at an event—everything counts. Volunteering takes a thousand forms:

  • Support and listening to families

  • Managing online networks and communities

  • Organizing events and meetings

  • Administrative support and communication

  • Helping hands of all kinds

 

You don't need to be affected by the syndrome to get involved. You just need the desire.

They trust us

Thank you to each of you for making, for making our projects for the Vaillants ever more real.

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Thank you to all those whom our photos don't show, but whom our hearts never forget. Without each and every one of you, none of this would exist.

Many thanks to Gan Assurance and the Groupama Foundation

The donation requested by the association Les Extra-Vaillants MYT1L from the Groupama Foundation has two objectives:

1. The acquisition of an IPad 10 tablet and accessories for Les Vaillants (France) in order to :

Promote the development of alternative and augmented communication

Promote the development of learning

Promote the autonomy of people with MYT1L syndrome

The aim is to help families put in place more appropriate tools that are not covered by the MDPH or for which it still has to pay. A broader support fund is also a second objective.

=> For more information, contact: extravaillants@gmail.com

2. Welcoming and supervising families and Vaillants at the 2nd International Day for Families, Clinicians and Researchers on the MYT1L gene on 5, 6 and 7 JUNE 2025. To date, more than 115 people, Valiants and their families are expected from all over France and abroad (Chile, South Africa, Poland, Serbia, United States, United Kingdom). 

Find the full publication on the Groupama Foundation website with testimonials from Familles de Vaillants (click on the underlined words)

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It was an intense day! A 1st Cross Solidaire for the association and the 12th for the Sacré Coeur and Ange Gardien schools and college in Domfront!
It will remain a vibrant memory and a support that will benefit Les Vaillants for a long time to come.


It was a moment of sharing, commitment, kindness and crazy warmth!
We formed a whole around the Vaillants, and their three little representatives of the day, Neia, Elsa and Alice.

Neia's family is originally from the region, so she was incredible! Thank you 🧡💛💙

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They did it! They achieved the incredible! More than 9,000 euros!!!
Cross Solidarity October 13, 2023 - School and college of the Sacred Heart and school of the Guardian Angel -Domfront (Orne)

A huge bravo, a huge thank you! And these words are very weak!
Thank you to the students, teachers, families, friends, individuals and professionals… thank you for this crazy mobilization! 💚💜❤️
A special thought to Azéline who worked so that we could benefit from this incredible opportunity: "without you, nothing would have been so strong, so true, so incredible!" 🧡💚❤️

Sincerely, words fail to express our infinite gratitude. To all of you mobilized for us, to the Vaillants
To the association Les Extra-Vaillants MYT1L

❤️ It's huge! and the Vaillants say to them: "Thank you!"

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  THANKS !

The fairy tale and the flight of glitter, we owe them to the BORNEO Communication agency

 

A great team led by an incredible gentleman who offered to support us and provide us with his resources and his communications know-how.

A few waves of a magic wand later, it's a brand new logo, a graphic charter and great coaching to become networking pros that they offer us with IMMENSE GENEROSITY!

Thank you, thank you so much for everything.

BORNEO COMMUNICATION!

 

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