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MYT1L Support

There is NO SPECIFIC TREATMENT for this syndrome today.

 

However

  • Treatment may be initiated based on the clinical assessment made by the physician in relation to certain repercussions of the syndrome.

  • Strict frameworks may be imposed regarding diet, the practice of adapted, sustained and regular sporting activity.

 

 !! MULTIDISCIPLINARY SUPPORT must be put in place AS SOON AS POSSIBLE.

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Medical, medico-social support,
regular rehabilitation throughout life

ACCOMPANIMENTS can be made (french model):

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  • In Liberal

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  • In CAMPS (Early Medico-Social Action Center) - french medico-social model

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  • In Hospital:   Autism Resource Center, Center for Neurodevelopmental Disorders...

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  • In a Medico-Psychological Center, in the Medico-Psychological and Pedagogical Center i(french medico-social model)

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  • At the place of education or at home via a SESSAD for example in french medico-social model

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The accompaniments
supported
by social security

  • Neuropediatrician / pediatrician

  • endocrinologist

  • Geneticist

  • Ophthalmologist / Orthoptist

  • ENT

  • Psychiatrist

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  • Physiotherapist

  • Speech therapist

  • Neurologist

  • Doctor specializing in sleep disorders

  • Doctor specializing in eating disorders...

The accompaniments
not supported by
social security

  • Neuropsychologist

  • Psychomotrician

  • Occupational therapist

  • Psychologist

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  • Specialized educator

  • Nutritionist

  • Osteopath...

!!! As part of your procedures at the MDPH, you can obtain financial assistance for these expenses (french model).

ILLUSTRATION IN IMAGES

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