FALC
Easy To Read and Understand
The FALC makes information simpler and clearer.
The FALC is useful to everyone, especially people with disabilities.
🧬 MYT1L Syndrome
Since the association was created, we want to make tools to explain the syndrome linked to the MYT1L gene to different people:
-
Families
-
Health and education professionals
-
The general public
It seemed important to speak directly to the people with MYT1L syndrome.
For many, the diagnosis came late.
Families and patients may have heard different information.
It is important to:
-
Help the patient understand THEIR difficulties in relation to THEIR difference
-
Show that progress and help are possible
-
Provide tools to better understand situations and support self-determination
These tools can also be used with all the people who:
-
Share care
-
Share daily life
-
Share activities with the person with MYT1L syndrome
- Institutional FALC file
"I understand my difference"
📘 I Understand My Difference
The booklet has several pages.
👉 Don’t worry!
👨👩👧👦 Families helped to test it.
We tried to explain many things.
📑 The booklet has 3 parts:
1️⃣ Genetics 🧬 → Why I am different
2️⃣ What is difficult for me and what I can do 😟💪
3️⃣ Examples of help 🤝 → How people can support me
✍️ In part 2 “What is difficult for me and what I can do”
You can color the circles:
-
🟩 I can do it
-
🟧 I need help
-
🟪 It is difficult
-
📅 Follow progress
🖊️ You can write the date on the booklet.
🔄 You can use it again later to see your progress.
📥 Download
🖼️ Click on the picture to open and download the booklet.
👥 Who made this project?
-
👩⚕️ Health professionals (AnDDI-Rares & Defiscience health networks)
-
🧑🏫 People trained in Easy-to-Read (FALC)
-
🏢 Associations
-
🎯 The goal
Put the person with a neurodevelopmental disorder
at the center of their life 🌟.
Help them to choose and decide for themselves 🗣️.
"I understand my difference"
FALC sheet editable
📝 The editable booklet
We give you an “editable booklet”.
👉 With this booklet, you can:
-
Sort and adapt parts 2 and 3 to your situation
-
Put the sentences in color
📊 Everything is in a table.
➡️ You can click on a line to delete it or change the color.
🖼️ Click on the picture to open and download the booklet.
⚠️ Please do not change:
-
The footnotes (they link to the official booklet)
-
The Easy-to-Read (FALC) sentences at the bottom of the last page
-
📧 Need help or information?
👉 Write to us at: extravaillants@gmail.com
Editable sheet
sample selection
FALC MYT1L SUPPLEMENT “I understand my difference”
CARDS TO MANIPULATE (in French)
"Today I know how to do it" and "what can help me"
ONLY UPON REQUEST VIA THE FORM NEXT TO THIS
· Design: FALC inter-sector working group AnDDI-Rares and DéfiScience
· MYT1L adaptation: Association Les Extra-Vaillants MYT1L.
· Graphics – Illustration: Clémentine Marot (+ royalty-free sources for MYT1L adaptations)
⚠️ No commercial use. Any request implies acceptance of the terms of use.
🙏 Thank you for respecting the collaborative and voluntary work carried out around this project.
Description and charter of use (in french)
CLICK ON THE IMAGE
FALC Transition Sheet
suitable for MYT1L
Page 2 of 7
"I understand my passage
from pediatric monitoring to adult monitoring:
This is the transition to the hospital "
FALC sheet adapted MYT1L