Resources
Association/ Foundation collaborators
&
Exchange groups reserved for families
International Family Exchange Group
International family-run Facebook group, accessible only to families with a member affected by the syndrome: The Original 2P25/ MYT1L Family Community
The DeepL translation tool can help you with your exchanges.
French-speaking family group
A family-run Facebook group, mainly for France (mainland and overseas territories) and French-speaking countries, open only to families with a member affected by the syndrome: La Bulle des Extra-Vaillants MYT1L
FOUNDATION IN THE USA - 2024
THE MYT1L PROJECT
THE AMERICAN TEAM
The MYT1L Project Leadership Team
Board of Directors
Elizabeth Wood, President
Kate Kratofil, Vice President
Matt Batcheldor, Secretary
Brittany Gary, Treasurer
Katie Clawson, Marketing Lead
Allison Coshenet, Regulatory Lead
Farah Fehring, Fund-Raising Lead
Amanda Eley, Director At-Large
The MYT1L Extravalientes association was born from the meeting of three families confronted with the same reality: the mutation of the MYT1L gene in their children.
Website: https://www.myt1l.es/
Email: via the contact form at www.myt1l.es/contacto