RESOURCES
ORPHA CODE
647799
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Orphanet code to be filled in or consulted if you are a physician, health care or social welfare professional...
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Orphanet code to be indicated if you are a caregiver or patient
SUMMARY AND DESCRIPTION AVAILABLE IN ENGLISH AND FRENCH
The Courses
The paths are very varied, reflecting the heterogeneity of pathology profiles.
There is no single solution.
The devices are multiple and depend on:
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the profile and needs of each patient
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family resources (time, finances, mobility, etc.)
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access to care and social assistance
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medical prescriptions
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decisions of the MDPH (Departmental House for the Disabled) in France
There is little information on adult patients.
Several situations were described to us: some are pursuing professional studies; others are in accompanied autonomy; some work part-time; and for others autonomy is not an option.
Schooling in a specialized environment
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Medical-Pedagogical Institute (IMP)
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Medical-Educational Institute (IME)
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Medical-Professional Institute (IMPro)
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EEAP (Establishments and Services for children and adolescents with multiple disabilities)
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Day hospital
From 3 to 20 years old
Schooling in the Middle
Ordinary
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In regular class
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In the ULIS Specialized system
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In EGPA (adapted general and professional education)
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with or without additional human assistance to collective AESH
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the intervention of a SESSAD
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suitable equipment
Elementary education,
college and high school
Education at home
Over more or less long periods
In coordination with the National Education services