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📍 INFORM
📍Inform to better understand
As part of the Cross Solidaire event, we produced a video explaining the syndrome and its impact, rare diseases, and the role and achievements of the Extra-vaillants MYT1L association.
US VERSION ON YOUTUBE (click on the underline word)
US PDF version !!!
Click on the image
📍 Inform in case of emergency
Practical information
while waiting for the EMERGENCY CARD and SHEET
FRENCH ONLY - Click on the image to read it. Activate the resource links using the underlined words in the document
GET TO KNOW BETTER
BETTER UNDERSTANDING
BETTER SUPPORT
ORPHA CODE
TND linked to the MYT1L gene
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Orphanet code to be filled in or consulted if you are a physician, health care or social welfare professional...
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Orphanet code to be indicated if you are a caregiver or patient
SUMMARY AND DESCRIPTION AVAILABLE IN ENGLISH AND FRENCH
📍Inform about our actions
Magazine
Extra-Vaillants MYT1L actuality
FOCUS N°3 AVAILABLE IN ENGLISH!!
CLICK ON THE IMAGE
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