• INSTITUTION, COMPENSATIONS, ORIENTATIONS : MDPH (FRENCH MODEL)

Maison Départementale des Personnes Handicapées (Departmental Office for Persons with Disabilities)

Contact the MDPH in your department to put your applications together.

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1. Use the many reference points in the special MYT1L MDPH GUIDE file (form above) and if needed, CONTACT US: extravaillants@gmail.com

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2. Link to the SUPPLEMENTARY FORM (click on the underlined words) for sending information to the MDPH, to be attached to any application to the departmental disability office.

Explained in this video at 01:12:59, in the presentation by Ms Soizic Maingant Le Gall (click on the underlined words)

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3. Link to a resource to help you write your LIFE PLAN (projet de vie) (click on "life plan"): APF France Handicap has published a guide for parents, partners and other relatives supporting a person with a disability, to help draw up their life plan and personalised compensation plan.

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4. Link to the RECOMMENDATIONS of the French National Authority for Health (HAS) :

• "Good practice recommendation – Neurodevelopmental disorders – Identification and referral of at-risk children – February 2020 (in French)"

It sets out the interventions to put in place as early as possible, depending on the difficulties of people at risk of, or with, a neurodevelopmental disorder (NDD). This information can help you, with your medical team, to set up the care the person needs and to obtain the corresponding support, for example when applying to the MDPH.

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• "Supporting people with a disorder of intellectual development (DID) – Part 1" – updated February 2023 (in French)

Good practice recommendations for supporting people with a disorder of intellectual development. 

This first part sets out the basics for understanding how the person functions, taking into account their developmental trajectory, skills, age, abilities and learning pace.

It also explains why families and professionals must work hand in hand to support the person as closely as possible.

It includes 7 files, 6 of them in Easy Read (FALC) for the person concerned, plus 2 supplements (summary and support guide).

 

• Care pathway guides for adults and children with epilepsy

CARE PATHWAY GUIDE – published on 14 June 2023 (in French)

These guides describe the care, support and overall follow-up of adults and children with epilepsy. They are intended for health and social care professionals, people with epilepsy and their families. They clarify the role of each professional, so that care matches the severity and complexity of each person's condition.

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• INSTITUTION, SCHOOLING, VOCATIONAL TRAINING  : French Ministry of Education 

1. Ministry texts on schooling and disability

2. Inclusive school information line FREE HELPLINE (from France): 0 805 805 110  

A single number to help you with the schooling of your child with a disability.

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• SUPPORT, RESOURCE : Groupement National des Handicaps Rares (French national rare disabilities network)  (GNHR)

A network serving people with rare disabilities, their families and the professionals who support them.

It is made up of 4 specialist centres (for example one for severe epilepsy and one for severe language disorders). It is run by 12 Rare Disability Relay Teams (ERHR) across France, which work with people of all ages, free of charge and without an MDPH decision. It also works with many associations.

On the GNHR "Entre Aidants Handicap Rare" platform, you will find resources, training and testimonials.

The relay teams also run free training for families. For example, the ERHR Nord-Ouest offers training with lunch provided, to make it easier for families to access tools and methods and so improve daily life for patients and those around them.

! Do not hesitate to contact them and ask all your questions.

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• TOOL – PATHWAY (OFFICIAL) : Mon Parcours HANDICAP. gouv.fr

Mon Parcours Handicap is an information, guidance and services platform for people with disabilities and their carers, designed on behalf of the French State by the Caisse des Dépôts and the CNSA (national solidarity fund for autonomy). -> Explainer video (in French)

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• RESOURCE – EMOTIONAL AND INTIMATE LIFE : HANDIGYNÉCO ET INTIM AGIR

1. The Handigynéco programme

Handigynéco gives women with disabilities access to adapted gynaecological care and health follow-up. Launched in 2016 in Île-de-France, then in Normandy and Brittany, it is due to be rolled out across France by 2026.

Volunteer midwives in private practice, trained in disability, visit care facilities or people's homes.

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2. IntimAgir resource centres

Places for information and discussion about intimate, emotional and sexual life, and for parenting support, for people with disabilities. They are open to people with disabilities and to professionals.

IntimAgir resource centres are being set up in every region of France.

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More details on Mon Parcours Handicap 

Ask your MDPH or family planning centre for the nearest centre, or search online for "intim agir" + the name of your region.

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• RESOURCE – AUTISM : National strategy for autism and neurodevelopmental disorders

Le centre IMIND presents the key points of the French national strategy for autism within neurodevelopmental disorders, with a three-year review: comprehensive and very interesting.

Made accessible in Easy Read (FALC).

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• RESOURCE – TRANSITION  see above, PART 3 – Health networks

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• RESOURCE – RESPITE : Need RESPITE? 17 guidance sheets for carers (in French)

They present the main respite solutions currently available, both national schemes and exemplary local initiatives.

Be curious and take the time to read: there may be a solution for you!

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• TOOL CONSENT of people with disabilities: a tool for reflection and support 

This guide, "Consent of people with disabilities", was written for professionals and carers. It shows that seeking the person's agreement and consent is an ongoing process in every area of their life: daily life, choice of home, care, relationships…

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• TOOL IF A PERSON GOES MISSING : GENDARMERIE/POLICE information sheet for missing autistic people and/or people with intellectual disabilities.

 Since April 2022, the gendarmerie and police have had a prevention tool for when an autistic person and/or a person with an intellectual disability goes missing.

FORM: INFORMATION SHEET (in French)  (click on the underlined words)

📍 Fill it in in advance,

📍 Check regularly that it is up to date,

📍 Keep it with you (handbag, photo on your mobile phone),

📍 SO that it is available and up to date when needed!