top of page

MYT1L Patients

in the world

Global representation of people affected by the syndrome
UP DATE

Information from the families who agreed to transmit the elements to the FB groups "Chromosome 2p25/ MYT1L Family Page" and "Les Extra-Vaillants - MYT1L ".

These data were processed anonymously.

They offer an interesting vision, but much lower than the reality of the diagnoses.

​

UPDATE FRANCE to NOVEMBER 2023 vs April 2022 :
- X 2 between 2022 and 2023

- X 3.7 between 2021 and 2023

​

​

UPDATE INTERNATIONAL APRIL 2022 vs October 2021

- + 40%  of patients identified World

- + 51% of patients identified Europe

- + 85% of patients identified France

​​

Find the April 2022 update, and the complete file to October 2021.

​

Screenshot 2022-05-02 at 10.57_edited.jpg

2023

Screenshot 2023-11-14 at 11.15.24.png

Early 2025,
In France, more than 60 families have been in contact with the association Les Extra-Vaillants MYT1L.
Internationally, more than 350 families have connected via the various Facebook groups.

© 2021 by Les Extra-Vaillants - MyT1L. Created with Wix.com

bottom of page