​

It was a great pleasure and honor for Les Extra-Vaillants MYT1L to take part in a dedicated mini-symposium on MYT1L syndrome on June 26th, during the 4th Triennial Meeting of the International Alliance of Academies of Childhood Disability (IAACD) and the 37th Annual Meeting of the European Academy of Childhood Disability (EACD), held in Heidelberg, Germany, from June 24th to 28th, 2025.

We were invited by the symposium chairs, Prof. Dr. Maja Hempel, Head of the Genetic Outpatient Clinic at University Hospital Heidelberg, Germany, and Dr. Moritz Mall, Research Group Leader at the Hector Institute for Translational Brain Research at the German Cancer Research Center, and joined by Dr. Juliette Coursimault, Clinical Geneticist at CHU Rouen.

​

We were also delighted to reconnect with Dr. Jorge Granadillo, Medical Geneticist at Washington University School of Medicine in St. Louis, USA, who had joined us just a few weeks earlier for the 2nd MYT1L Family–Clinician–Researcher Meeting held in early June 2025 in Rouen.

June 26th was a day rich in discussions, discoveries, and plans for collaboration.

We had the opportunity to meet the teams of Dr. Moritz Mall and Prof. Maja Hempel in their respective units at the Heidelberg Clinic. On the agenda: a tour of the genetics department and research laboratories, exchanges with the teams, discussions on potential projects, and a virtual meeting with several German families.

The day ended on a warm and friendly note over a shared meal.

Thank you for your hospitality and for these essential moments!

Long live collaboration and Franco-German friendship! 🇫🇷🇩🇪

​

It was also a great pleasure to attend the conference sessions in the following days and to witness the international medical community’s commitment to improving the lives of patients. Many thanks to the organizers for their kind invitation.